Advocacy efforts led by the National Bleeding Disorders Foundation (NBDF), in collaboration with the Glanzmann’s Research Foundation and the CHES Foundation, have resulted in a dedicated ICD-10-CM code for Glanzmann thrombasthenia, a rare inherited platelet disorder. The new code, D69.11, will help clinicians, researchers, insurance companies, and public health systems identify Glanzmann thrombasthenia more accurately and better understand the needs of people living with the disorder.

Five years ago, the National Bleeding Disorders Foundation (NBDF) set an ambitious goal: to transform how bleeding disorders research is conducted by ensuring patient voices and experiences are included in every phase, from study design and recruitment to outcomes and implementation.

The National Bleeding Disorders Foundation (NBDF) has been nominated for the Inaugural Prix Galien Patient First Award in Honor of Michael J. Fox by The Galien Foundation, a global institution recognizing groundbreaking achievements in the life sciences. The newly introduced award recognizes excellence in clinical research, clinical trials, and patient-centered care improvement initiatives that embody the principle "No decision for me without me."