Join us for our final event of the year!

Our Factor Family event is open to anyone in our community that would like to join us for a bit of holiday fun!

It will be a blast and we are so excited to celebrate with you all!

YETI | Youth Effectively Transitioning to Independence. YETI promotes confidence and supports teens with bleeding disorders aged 16-20, as they transition into independence. YETI, one of the strongest programs in the world of bleeding disorders across the US, is an experiential train-the-trainer weekend conference created by PNWBD. Teen programs that effectively address topics around successful transitions into young adulthood can be a wonderful way to build community, increase parent, teen and young adult engagement with your chapter, and get medically essential information to “stick.” But how do we build more than just an event here and there? How do we get teens to come? How do we keep them coming back and eventually transition them into giving back?

The YETI conference was dreamt up and designed by people who believe in the positive impact of quality youth programming, and this immersive weekend workshop will put you directly into the types of experiences that we know result in high-impact teen events. Beyond that, bleeding disorder organizations will learn to build a map of how events become a program, and how a program can become a powerful driver of chapter and hemophilia treatment center (HTC) engagement. YETI encourages teens to become leaders at their local organizations and to be willing to contribute to both the design and creation of future teen programs!

YETI also provides for the beginnings of a national network of teens, aged 16 – 20. Not only is YETI about building lifetime connections and friendships, but it also provides the chance for teens to build relationships across state borders. Currently, there is no real opportunity for teens to gather and develop relationships across state borders. Organizations throughout the US are doing some teen programming but very little is done outside of their HTC or chapter boundaries. The young participants will experience an Oregon teen weekend as a part of the Oregon Teen PEAK (Providing Education, Advocacy and Kinship) program.

The National Bleeding Disorders Foundation's Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. We look forward to meeting with legislators and staff in person with hundreds of volunteer advocates across the United States to discuss issues important to our community.

Join us as we celebrate World Hemophilia Day! This special evening is an opportunity to reflect on the progress our community has made, honor those who have been part of the journey, and look forward to a brighter future. We'll gather for dinner and fellowship before heading to the Bob Kerrey Pedestrian Bridge, where it will be illuminated in red in recognition of World Hemophilia Day.

Join us for a meaningful adult retreat designed to inform, empower, and connect. Throughout the weekend, we’ll dive into important topics for our community. This retreat offers a supportive space to learn, ask questions, and gain practical tools you can use in everyday life.

Developed by CSL Behring, the Gettin' in the Game (GIG) Junior National Championship (JNC) was the first and currently only national sports competition designed specifically for the bleeding disorders community. The program gives children with bleeding disorders an opportunity to learn baseball, basketball, golf, or swimming and provides education and information-sharing opportunities for participants and their parents/caregivers.

Camp Wilderness is a five-day four night summer camp experience specialized for youth with bleeding disorders. The primary purpose of Camp Wilderness is to provide a camp experience for youth with bleeding disorders who were excluded from participating in traditionally summer camping programs. By providing a camping experience specifically planned, prepared and geared toward youth with bleeding disorders our camp programs empower and motivate youth with bleeding disorders to seek a life of freedom and independence that is not limited by their chronic illness.