Since its formation in 1991 in response to the HIV/AIDS crisis, the Neil Frick Resource Center (NFRC), formerly known as the Hemophilia and AIDS/HIV Network for the Dissemination of Information (HANDI), has served the bleeding disorders community by answering specific questions, fulfilling information requests, providing quality educational publications, and making referrals to additional sources of assistance. The NFRC processes thousands of requests annually from a variety of patrons – which include patients, family members, NBDF chapter staff, hemophilia treatment center providers, other health care professionals, teachers, students, international organizations, and the general public.

The subject areas of these requests reflect a wide range of needs – such as, hemophilia, von Willebrand disease, other rare inherited blood disorders, healthcare coverage, treatment, gene therapy, women’s issues, inhibitor concerns and school issues.

To reach the NFRC, you can either submit a request for information here, e-mail info@bleeding.org directly, or call 800.424.2634 ext 2.